On the 10th June, Slí na Ríochta 2012 will take riders through some of the most scenic parts of the McGillicuddy Reeks, Ireland’s highest mountain range, and around Lough Brin and Caragh Lake. Slí na Ríochta (The Kingdom Tour) will be a seriously good warm-up for the ‘Ring of Kerry’ Charity Cycle (to be held three weeks later) that caters for cyclists of all ages and abilities.
Sign-on is from 9am at Beaufort GAA Club grounds. The Event Fee is €20, and this will cover costs incurred to cover ambulance, and mechanical assistance, insurance, refreshments etc. This event will fundraise for a the global foundation ’The Myelin Project’. See attached letter of authorisation. Contributions to this charity is separate to the fee and is a the discretion of the participant.
The Myelin Project, established in 1989, aims to fund research to find a cure for demyelinating diseases. Founded by Augusto and Michaela Odone for their son, Lorenzo, who suffered from X-linked adrenoleukodystrophy (X-ALD), the most common of the leukodystrophies. A multinational gathering of families joined the Odones in their efforts. Stricken by one or another of the demyelinating diseases, they refused to be passive victims by encouraging cooperation among researchers, and by providing scientists with funding for translational and clinical research. While The Myelin Project has taken the conventional steps to advance remyelination research, we have taken the unconventional step of encouraging direct interaction between families and scientists, we continuously remind the scientists that there are people waiting for effective treatments. Research has been focused on efforts to understand mechanisms of myelin repair, with a view to discovering therapies that will permit restoration of damaged myelin. It is anticipated that these will permit at least partial restoration of function in patients suffering from myelin loss.
The story of the Odones’ struggle was dramatized in the film“Lorenzo’s Oil”, starring Nick Nolte and Susan Sarandon, released by Universal Studios in 1992.
For Slí na Ríochta 2012 proposed route see: